Kayla was such a trooper and didn't complain that much about being locked down for most of the day. We entertained her and tried to keep her spirits up. She is such a good little girl.
The doctors did a CT scan and several X-Ray's and confirmed that she didn't have any damage from the fall. We were so relieved until the doctor mentioned that she had brain stem and frontal lobe atrophy consistent with congenital myotonic dystrophy. That was a punch in the gut that I wasn't expecting. I know that it's a reality of this darn disease but to hear the doctor say those words about my angel Kayla, really took my breath away. I cried on the ride home but then got through it and I'm ok now. I know that I can't focus on that right now as Kayla has done more than anyone expected her to so we feel very blessed that she is even here with us. I really believe that an angel scooped in to save Kayla from that fall. When I got home I saw how she fell and I realized what a miracle it was that she's ok.
Feeling blessed,
Lisa
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I was hopeful about Sara's academic achievement potential until I began to home school her (I am a certified teacher in several academic areas including sp ed) and give her one on one.
Now at the age of 12, she no longer wants to learn from me. I have found a school for learning challenged students. It has its advantages and disadvantages.
Her neuro psych testing at the age of 11 depressed me for several days.
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